Patient, Carer and Family Reference Group
The group was established as part of the Trust’s Integrated Improvement Plan (IIP), following recommendations from the Care Quality Commission (CQC), with the aim of strengthening patient, carer and family involvement in service improvement.
Between January and September 2025, HWNN supported the group through a series of meetings, providing independent facilitation, feedback and developmental support. Over time, the PCFRG evolved from an early-stage forum into a more structured and purposeful advisory group, helping to ensure that lived experience informs decision-making across services.
Recommendations
To support the continued development of the PCFRG as a credible and effective forum, HWNN recommends:
Building and Maintaining Trust
- Create safe, structured opportunities for members to share experiences
- Recognise and value lived experience
- Provide a clear feedback loop on how their input influenced change
- Reinforce the purpose and impact of member involvement
Strengthening Governance Clarity
- Clearly define the group’s role within the Trust’s Governance and IIP
- Ensure transparency in decision-making and reporting processes
- Provide clear induction and guidance for new members
Monitoring Purpose and Function
- Regularly review the group’s Terms of Reference and structure
- Broaden and diversify group membership
- Support member development and strengthen engagement approaches
Demonstrating Trust Commitment
- Improve communication, coordination, and administrative support
- Ensure visible leadership engagement
- Provide regular updates on progress and impact
- Enable wider participation and ongoing evaluation of the group
Downloads
You can download the full report here.
If you need this report in a different format, please email info@hwnn.co.uk.
