Case Study: Gender Realignment
Between March 2017 and September 2020, Healthwatch Nottingham & Nottinghamshire conducted a longitudinal case study, interviewing one individual ten times as they went through the gender realignment process via their GP, a Gender Clinic, and hospital. The individual had first come to Healthwatch's attention through the 2017 LGBT+ Project.
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Key findings
- The individual reported consistently positive experiences with health and social care professionals, including seeing the same GP throughout, and described the care they received from specialist services (e.g. the Centre for Dysphoria, Gender Psychiatrist, and laser treatment staff) as encouraging, informative and compassionate.
- A shared decision-making approach was applied throughout, with the individual involved in choices such as selecting their surgeon and treatment options.
- Time restrictions were identified as a major source of anxiety: the actual waiting time (21 months) was considerably longer than advertised (6–8 months) on the Gender Dysphoria clinic's website. The individual described this wait as detrimental to their mental health, and found it particularly difficult due to their age (52).
- Communication issues were noted, including appointments being changed without notice and a lack of written information — most information was given verbally only.
- Financial burden was a significant theme: hormones had to be purchased privately before being prescribed; laser hair removal (not funded by the NHS) cost the individual £1,600; and the individual ultimately paid for private surgery (£13,976) rather than wait for the NHS date, which had been repeatedly delayed.
- Support networks — including the Trans Hub group, ASRA Housing Association, a post-operative peer support group, and later a local church — were valued, though the individual noted these had been an inconsistent support, with COVID-19 disrupting group meetings partway through the case study.
- The individual described the process as an emotionally significant life event, with both high points (getting a surgery date, receiving their Gender Recognition Certificate) and difficult periods (anxiety around paperwork, unsupportive neighbours, and a lack of support for co-occurring adult ADHD and anxiety needs, which fell into a local service gap at the time).
Recommendations
- Primary care for individuals undergoing gender transition should be provided by one named, fully trained person offering compassionate, consistent care throughout the process.
- Primary and specialist care providers should give detailed medical advice, with the process and timeline explained at a pace the individual can absorb, including practical guidance on related matters such as lifestyle changes and cost of living impacts.
- Detailed information should be provided in formats beyond verbal consultation alone — for example leaflets in plain English, video clips, or website resources explaining the clinical and surgical steps involved.
- Given the inevitability of waiting times between procedures, individuals should receive continuous, compassionate support from primary care during waits; specialist services should keep patients fully informed of timelines and assess both physical and mental health support needs; and stronger links with voluntary sector organisations should be established so patients can be signposted to additional support where needed.
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Case Study: Gender Realignment